Informal Caregivers: A Key Element in Rehabilitation

Authors

  • José Vítor Reis Lopes Gonçalves Serviço de Medicina Física e de Reabilitação, Vila Nova de Gaia, Portugal, Centro Hospitalar Vila Nova de Gaia/Espinho, Portugal
  • Filipa Vilabril Serviço de Medicina Física e de Reabilitação, Centro Hospitalar de Trás os Montes e Alto Douro, Portugal
  • Margarida Pereira Serviço de Medicina Física e de Reabilitação, Vila Nova de Gaia, Portugal, Centro Hospitalar Vila Nova de Gaia / Espinho, Portugal
  • Joana Santos Serviço de Medicina Física e de Reabilitação, Vila Nova de Gaia, Portugal, Centro Hospitalar Vila Nova de Gaia / Espinho, Portugal

DOI:

https://doi.org/10.25759/spmfr.365

Keywords:

Caregivers, Palliative Care, Rehabilitation

Abstract

Introduction: Informal caregivers are the people who take care of other persons in a chronic, deficiency or dependent situation, partially or totally, temporarily or forever, besides their regular work. There are several functions related to informal caregivers and the act of caring is related to several positive and negative aspects that are important to identify in order to plan and discuss a correct health plan. It is essential that health care professionals know the impact of the act of caring in the caregivers.

Methods: The used databases were “Medline”, “PEDro” and “Scielo and the keywords used were “Informal”, “Caregiver”, “Palliative” to conduct a narrative review that obtained 173 articles that were later reduced to 12 articles by analysis and filter utilization. The goal of this work was to make a literature review of consequences of the act of caring in the informal caregivers.

Results: From the 12 articles there was not any positive aspect of the act of caring. On the contrary, there were innumerable negative aspects associated with caring. Female caregivers were more affected by the negative effects of caring.

Discussion: The act of caring is associated with positives and negatives aspects that are diffused in the literature. However, only the negative aspects were focused on the analysed articles. The bigger impact of the negative aspects and the highest prevalence of female caregivers were also accord to the literature.

Conclusion: The increased aging of population is related with a more dependent status and will demand an increase number of caregivers. The act of caring is associated with several positive and negative aspects that should be remembered in order to make the best decisions in health planning. Health professionals should be sensitized to these aspects so they can be able to decrease them and potentiate the support by the caregivers.

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References

Rocha Pereira H. Subitamente Cuidadores Informais Dando voz(es) às experiências vividas. Lisboa: Lusociência; 2013.

Secção de Medicina Física e de Reabilitação da Union Européenne des Médecins Spécialistes (UEMS); Académie Européenne de Médecine de Réadaptation; European Board of Physical and Rehabilitation Medicine. Livro Branco de Medicina Física e de Reabilitação na Europa. Lion: UEMS; 2009.

Eurocarers - European Association Working for Carers [Internet]. Eurocarers.org. 2019 [cited 23 June 2019]. Available from: https://eurocarers.org/

Organização para a Cooperação e Desenvolvimento Económico (OCDE). Health at a Glance 2017. Paris: OECD indicator; 2017.

Cuidadores | Associação Cuidadores [Internet]. Cuidadores.pt. 2019 [cited 23 June 2019]. Available from: https://www.Cuidadores.pt/

União Europeia. Informal care in Europe - Exploring Formalisation, Availability and Quality. Brussels: UE; 2018.

Reigada C, Pais-Ribeiro JL, Novellas A, Gonçalves E. The caregiver role in palliative care: a systematic review of the literature. Health Care Curr Rev. 2015;03: 143. doi: 10.4172/2375-4273.1000143

Ferreira F, Pinto A, Laranjeira A. Validação da escala de Zarit: sobrecarga do Cuidador em cuidados paliativos domiciliários, para população portuguesa. Cadernos Saúde. 2010; 3: 3-19.

Washington KT, Pike KC, Demiris G, Parker Oliver D, Albright DL, Lewis AM. Gender Differences in Caregiving at End of Life: Implications for Hospice Teams. J Palliat Med. 2015;18:1048-53. doi: 10.1089/jpm.2015.0214.

Vellone E, Fida R, Cocchieri A, Sili A, Piras G, Alvaro R. Positive and negative impact of caregiving to older adults: a structural equation model. Prof Inferm. 2011;64:237-48.

Pinquart M, Sorensen S. Gender differences in caregiver stressors, social resources, and health: An updated metaanalysis. J Gerontol B Psychol Sci Soc Sci. 2006;61:P33–P45.

Redecker C, Reig J, Carrión T, Martinez S, Armayones M, McCarthy D. The potential of ICT in supporting domiciliary care in Spain. Brussels: European Commission, Joint Research Center; 2010.

DiGiacomo M, Hatano Y, Phillips J, Lewis J, Abernethy AP, Currow DC. Caregiver characteristics and bereavement needs: Findings from a population study. Palliat Med. 2017;31:465-74. doi: 10.1177/0269216316 663855.

Schrank B, Ebert-Vogel A, Amering M, Masel EK, Neubauer M, Watzke H, et al. Gender differences in caregiver burden and its determinants in family members of terminally ill cancer patients. Psychooncology. 2016;25:808-14. doi: 10.1002/pon.4005.

Abernethy A, Burns C, Wheeler J, Currow D. Defining distinct caregiver subpopulations by intensity of end-of-life care provided. Palliat Med. 2009;23:66-79. doi: 10.1177/0269216308098793.

Harding R, Gao W, Jackson D, Pearson C, Murray J, Higginson IJ. Comparative analysis of informal caregiver burden in advanced cancer, dementia, and acquired brain injury. J Pain Symptom Manage. 2015;50:445-52. doi: 10.1016/j.jpainsymman.2015.04.005.

Maltby KF, Sanderson CR, Lobb EA, Phillips JL. Sleep disturbances in caregivers of patients with advanced cancer: A systematic review. Palliat Support Care. 2017;15:125-40. doi: 10.1017/S1478951516001024.

Nielsen MK, Neergaard MA, Jensen AB, Bro F, Guldin MB. Psychological distress, health, and socio-economic factors in caregivers of terminally ill patients: a nationwide population-based cohort study. Support Care Cancer. 2016 ;24:3057-67. doi: 10.1007/s00520-016-3120-7.

Ejem D, Bauldry S, Bakitas M, Drentea P. Caregiver burden, care recipient depressive symptomology, and social exchange: does race matter? J Palliat Care. 2018;33:100-8. doi: 10.1177/0825859718758120.

Hirdes JP, Freeman S, Smith TF, Stolee P. Predictors of caregiver distress among palliativehome care clients in Ontario: Evidence basedon the interRAI Palliative Care. Palliat Support Care. 2012 ;10:155-63. doi: 10-1017/S1478951511000824.

Gayoso MV, Avila MA, Silva TA, Alencar RA. Comfort level of caregivers of cancer patients receiving palliative care. Rev Lat Am Enfermagem. 2018;26:e3029. doi: 10.1590/1518-8345.2521.3029.

Poort H, Peters ME, Gielissen MF, Verhagen CA, Bleijenberg G, van der Graaf WT, et al. Fatigue in Advanced Cancer Patients: Congruence Between Patients and Their Informal Caregivers About Patients' Fatigue Severity During Cancer Treatment With Palliative Intent and Predictors of Agreement. J Pain Symptom Manage. 2016;52:336-44. doi: 10.1016/j.jpainsymman.

02.017.

Shaffer KM, Jacobs JM, Nipp RD, Carr A, Jackson VA, Park ER, et al. Mental and physical health correlates among family caregivers of patients with newlydiagnosed incurable cancer: a hierarchical linear regression analysis. Support Care Cancer. 2017;25:965-71. doi: 10.1007/s00520-016-3488-4.

Published

2021-05-24

How to Cite

1.
Reis Lopes Gonçalves JV, Vilabril F, Pereira M, Santos J. Informal Caregivers: A Key Element in Rehabilitation. SPMFR [Internet]. 2021 May 24 [cited 2024 Dec. 26];33(1):18-24. Available from: https://spmfrjournal.org/index.php/spmfr/article/view/365

Issue

Section

Review Article

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